Hanger Clinic called this morning letting me know the pattern Lily had picked out for her DAFO was discontinued, so she would have to pick out a new one. After therapy, we went through and she chose "denim". I hope she likes it! We had to mover her pick-up appointment back though to Friday May 29, as the DAFO company was short staffed.
I was finally able to attend Lily's PT today. Jason is a super great guy, and really knows what he is talking about. He is DPT, and also is involved with the American Physical Therapy Association, the Wisconsin Physical Therapy Association, is a Certified Myofascial Trigger Point Therapist, and Certified in Functional Movement Systems.
He looked at Lily's pictures of her back injury, and noted it ran from T12 down through L5. L3,4, and 5 is where he is noting trigger points and nerve damage in her back. So he said it is very likely that is where all of her symptoms are coming from. He's a little baffled by her whole right-sided hemiparesis, but the arm is not really affected as bad as her foot is. Jason is going to do some research and see what he can find. There is 2-2.5 inches difference in her left foot arch and her right foot arch.
After working with her for a bit, Jason noticed Lily's muscles were starting to "work together a bit more", which means her PT and exercises she is doing are helping somewhat. He did a lot of work with her back, shoulders, and calf's.
After therapy, we were talking a bit. I asked Jason about RSD, and if he felt she had it. He said definitely. She has a chronic condition, and it is going to require constant physical attention, and making sure she follows through with it. Also, the knee injury she had in January, 2014, plays a part in why her foot is so bad. It didn't cause the pes cavus, but had a lot to do with it.
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