Monday, May 25, 2015

May 22 ~ PT #3

Although the pt and exercises seem to be helping, Jason feels Lily would benefit from  Trigger-point Dry Needling.

"TDN is an effective therapy to treat muscular tension and spasm which commonly accompanies conditions such as arthritis, nerve irritation, muscular strain, ligament strains and herniated discs."
Taken from : What is TDN?

At her next appointment, which is May 28, she will be having the TDN done.  Hopefully it helps!!

May 19 ~ New DAFO design/PT #2

Hanger Clinic called this morning letting me know the pattern Lily had picked out for her DAFO was discontinued, so she would have to pick out a new one.  After therapy, we went through and she chose "denim".  I hope she likes it!  We had to mover her pick-up appointment back though to Friday May 29, as the DAFO company was short staffed.

I was finally able to attend Lily's PT today.  Jason is a super great guy, and really knows what he is talking about.    He  is DPT, and also is involved with the American Physical Therapy Association, the Wisconsin Physical Therapy Association, is a Certified Myofascial Trigger Point Therapist, and Certified in Functional Movement Systems.

He looked at Lily's pictures of her back injury, and noted it ran from T12 down through L5.  L3,4, and 5 is where he is noting trigger points and nerve damage in her back.  So he said it is very likely that is where all of her symptoms are coming from.  He's a little baffled by her whole right-sided hemiparesis, but the arm is not really affected  as bad as her foot is. Jason is going to do some research and see what he can find. There is 2-2.5 inches difference in her left foot arch and her right foot arch.

After working with her for a bit, Jason noticed Lily's muscles were starting to "work together a bit more", which means her PT and exercises she is doing are helping somewhat. He did a lot of work with her back, shoulders, and calf's.

After therapy, we were talking a bit.  I asked Jason about RSD, and if he felt she had it.  He said definitely.  She has a chronic condition, and it is going to require constant physical attention, and making sure she follows through with it.  Also, the knee injury she had in January, 2014, plays a part in why her foot is so bad.  It didn't cause the pes cavus, but had a lot to do with it.

Thursday, May 21, 2015

May 17 ~ A Special Day!

Ok, so this has nothing to do with Lily's health.  Just a nice positive post.

Lily participated in the Rite of Confirmation today at church.  Her Faith Statement was beautifully written, and it showed the entire congregation how much faith that young lady has.  She truly is a blessing to us!  Congratulations Lily!



Wednesday, May 20, 2015

May 15 ~ First Physical Therapy Appointment

Lily had her first PT today, and it was very interesting, or so I'm told.  It was the first appointment since we started this journey with Lily that I didn't take her to. :(  And dad is not great at remembering details or asking questions.

Jason, the PT, did lots of work on her, and said he feels she has nerve damage in the L3, 4, and 5 area.  Timothy (dad) and Lily both told him that's where she fell a few years ago (2007) and hurt her back along the spine.  He asked them to have me email a picture.  Here is what she did:





It was discovered that Lily doesn't have any balance for her hips either.  One hip is also slightly off than the other, but that is due to the tightening of the muscles.

She was given some exercises to do, so I hope she follows through with them (she doesn't take well to us telling her what to do).

Hopefully I can attend her next PT on Monday and ask lots more questions.

May 6 ~ Ugh. Insurances.

The pediatric orthopedic surgeon's office finally called back today, but I never did get back to them.  The cast was already off and I wasn't about to go through putting another cast on Lily.

Then Hanger Clinic called stating the insurance she had listed was saying she was no longer covered. Ugh.  Insurances.  Love them and hate them.  She had just started our claim for it, and kept getting denied.  Our review was due April 30th and I had all the proper papers in. So I called, and they took their precious time putting the information in to our account.  So they had to put a rush on it.  If she had done the paperwork the week before like she should have when we were there  we wouldn't have had this issue.  So getting the orthotics was pushed back a week for sure.