Pain

CRPS awareness ribbon.

Lily asked me yesterday if the pain from CRPS is in just one place, or if it can be anywhere.  I explained that it can be anywhere. 

Most of her pain right now is in her hips, but that could be from dancing all night at hoco17.  She has had pain in her right arm and wrist.  Usually it's in her arms, but once in a while she feels it in her legs.

It's hard to explain to her that this is going to come and go, and it can affect any part of her body.  This is going to be a lifelong fight for her, and she may go in to remission for years, or have pain for a long time.  Still figuring out medication, and waiting for more answers at her pediatric neurologist appointment in November.