Chiropractor

Lily's new chiropractor was very knowledgeable and give us lots of information, while also re-enforcing some information we already had.  He was able to do a type of ultrasound on her back muscles which were very tight, and after doing some things with her, they loosened up a lot.  He's hopeful that these muscles will all become stretched and perform how they are supposed to!

New chiropractor

Lily decided she wanted to try a chiropractor again.  So we found a new one in town, and I talked with the chiropractor there.  He sure seemed to know what he was talking about.  Hopefully this will be a step in the right direction and he can really help Lily out!

Forgot to post!

Lily was discharged from Dr. Edgar a few months ago (back in August),  She had improved greatly with her physical therapy, so he felt that she did not  have to go through any extended testing to figure out what was going on.  After he spoke with may specialists around the world, they were ready to send her to Mayo to do a lot of testing for hidden tumors.  He felt at this point there was no need for that, because if her issues were all being caused by tumors, she would not have improved with pt as she did.

Dr. Edgar and his colleagues believe that Lily may have what is know as 'arterio-venous malformation of the spine'.  It would not have shown up on her MRI of her spine because it is so small.  This could be the reason that she is having issues with hemiparesis, pes cavus,  back pain, hip pain, and limping.

Dr. McDougal, her pediatric orthopedic surgeon, saw Lily on the same day.  She is still concerned with Lily's foot, but agrees that there is not much to be done at this point except wear the orthotics.  Lily's bunion is still not doing well, but we were able to get to Hangar and have the plastic stretched so that the bunion isn't rubbing against it.  That does help; however, Lily still isn't keep on wearing her orthotics.

We did go to the Heel Store in Green Bay, and Lily was fitted with a great pair of shoes by a podorthist.  These really seem to help her, and she feels like her hips "work together" better.

Lily can't run a mile any more, as it causes too much pain.  She also can't swim laps, even just half the length of the pool as it hurts her hips.  She used to be such a great swimmer.  Her gym class is extremely challenging for her because she likes to do her best, and just isn't able to with this disability.

Blood test results

Lily's Lyme's test came back negative...YAY!  One more thing ruled out.  But that still leaves us with no "official" reason for her issues.  PT Jason is fairly certain it is from her injury to her back.

Dr. Edgar's office finally called back 4 days after I initially contacted them about getting a blood test ordered and RSD.  He would have ordered the test, but I told them that she had already had the test done and we were waiting for results.  As for the RSD, we were to contact the Milwaukee Children's Hospital regarding that.  We can't drive that far, so we will just be dealing with it as we have been.

June 3 ~ 8th grade promotion!

With all that has been going on with Lily the past few months, she has been great keeping up with school.  Sometimes she fell behind, but when we worked it out, she got back up and went for it!

Last night was 8th grade promotion.  Lily was beautiful!  (well, she always is though!) We are so proud of the young lady she has become.  Next year she is a Freshman!!  Yikes!  All of the 8th graders also received a $1000 scholarship!  Awesome!