I'm sorry it's been a while, but there is no new developments. Unfortunately Lily is still in pain. She continues to do exercises that were recommended by her PT (although in my opinion she doesn't do them enough) and she is still in pain.
I am going to take her to a new orthopedic surgeon to see what he will do, and take a different route. I am hurting that my daughter has to be in so much pain, and her pediatric orthopedic specialist/surgeon doesn't seem to want to do anything except throw her in orthotics.